Welcome to Laps 4 Life
The Laps for Life Fun Run was created in 2013 to help raise money for four Manitoba families who have children with a rare disease called Batten Disease.
Batten Disease is a rare neurological disorder that has different types depending on the age people start to show its symptoms. The children that we are fundraising for all have Late Infantile Batten Disease, meaning that they grew up appearing perfectly healthy until about age 4. Then they began having trouble forming their words, started stumbling, and started having seizures. Children with Late Infantile Batten Disease gradually go blind, lose the ability to walk and talk, and become mentally impaired. This disease is always fatal and there is no cure. Children with Late Infantile Batten Disease generally do not live much past their 12th or 13th birthday.
Batten Disease is extremely rare; we believe that there are currently only 12 kids in all of Canada who have it, and 4 of these children live in Manitoba. Three of the kids live in Winnipeg and the 4th child lives in Brandon. And because Batten Disease is so rare, there is no government funding for treatment or research.
* The goals of the race are two-fold.
o First, we aim to raise money for the families affected by the disease to help with the financial strain of looking after a loved one who is sick.
o It is also our goal to raise awareness for Batten Disease and educate people about what the disease is, so there is a higher level of understanding in the general public.
* All of the proceeds from the race go directly to each of the four Manitoba families affected.
* The race provides a wonderful opportunity for families, friends and community members to gather and not only show financial support for these families but emotional support as well. With the help of community education initiatives we are hoping to help spread the word about Batten Disease so these families no longer feel like they are going on this journey alone.
This year the race will be held on Saturday, April 29tth, 2017 at Kildonan Park.
Race starts at 9:00 am. Register at the Regent Running Room or on race day. Cash or cheque only.